Migraines, oh how I loathe thee

I’ve reached the point where it is hard to remember what those glorious days were like just after my IV infusion therapy.  Actually, I reached that point not very long after the therapy.  I am so sad at how little difference it made afterwards.

Probably the one plus is that my rescue medications work better than they did before.  I can actually get some relief when I take them now but slowly and surely that perk is diminishing.

My doctor put me on another preventative that didn’t help so now I am starting yet another.  It is a never-ending trial and error roller coaster that I desperately want to get off.

After my appointment this morning, I came home and sobbed. I just get so frustrated that eventually the hopeless feelings have to pour out. I caught myself thinking all kinds of depressing thoughts and just let the tears fly.

It all just builds up and I can’t put on a smiling face anymore.  I can’t stand to say I’m OK when I’m really not. So I sit by myself and fall apart.

It is a bad day.  The pain is high and my spirit is low. I will cross all my fingers and toes and beg for a little Irish good luck for the next preventative. It’s a cousin of one of tried before that tends to have less side effects. I guess we shall see.

Dare I hope?


Linking up with Shell for the first time in forever.

IV Infusion Therapy For Migraine

I saw my neurologist early this month and told him that I have reached a point where none of my normal medications are working for my pain.  Although I try to keep from taking too many, the sad reality is that I have been taking more and more as preventatives have not worked.  I still have to make it through the workday and be functional.  I still have to get the kids to school and help with homework and other daily activities.  I tend to spend my weekends not functional wasting what should be family time.

In the past we have used steroids to break a pain cycle and wean off medications but frankly that hasn’t worked well.  So this time he prescribed IV infusion therapy lasting 3-5 days.  I have had IV medication at urgent care before when I had a bad migraine but I had never heard of doing it daily for any period of time

He prescribed 2 times per day as he said it tends to work better.  Waiting for the center to schedule me felt like forever but I actually only had to wait a week so that it could start on a Monday.  Thank goodness I could take the time I needed and my husband could work around his scheduled to chauffeur me around.  And my MIL helped by getting the kids to and from the bus.  It all worked out.

So on the first day they gave me IV Benedryl, an anti-nausea, Toradol and Depacon.  The first two are supposed to help with any side effects of the last two.  But frankly I ended up with restless limbs, anxiety and generally feeling awful along with head pain.  The pain itself wasn’t too bad that day.  I slept between the appointments so the side effects really hit me in the evening and I was not looking forward to the next day.

The second day they had me take oral Benedryl before I got there and my doctor said to skip the anti-nausea.  This worked so much better as I had no side effects.  I was drowsy but nothing else.  My head was about the same as Monday.

Day three was the worst for my head.  I guess maybe it was revolting against the detox from its familiar meds.  We were in a groove with the appointments and to minimize the holes in my hands we were keeping the IV needle in between appointments.  I had to miss my daughters chorus concert because I couldn’t handle the pain.  Luckily I had already seen her a few weeks before at a different concert so I could feel less guilty.  I could have stopped at this point but that made no sense since I was in so much pain so we decided I would go the full five days.

On day four my head was much better.  The pain was mild and I hoped this meant the cycle was really breaking.  I was able to go to my son’s band concert that night and although I was tired and a little nauseous, I didn’t end up with more pain from the sound.

Day five started with no pain but we powered through the last day of medication anyway to really beat down the cycle.  Looking back over the whole week I feel I really took care of myself and felt it was a new beginning.  I felt a lot better and ready to really address my triggers.

Saturday and Sunday were glorious days.  I had no pain, much more energy and a great outlook for the future.  I started doing yoga to work on tension and stress.  I started drinking about 80 ounces of water a day.  I really wanted to take advantage of the good feeling and start some positive habits.

By Monday and back to work I could really tell that stress and tension are big issues.  I ended up in pain by afternoon and it didn’t go away.  Tuesday morning I woke and it was  still there so I had to take my first medication for rescue.  My doctor recommended limiting medication to 2 days a week.  I made it through the rest of the week we pain off and on but didn’t take anything more until the weekend.  Still doing yoga and drinking water.  Working on taking breaks and standing during the day to keep pain at bay.  I have to keep learning what helps and what doesn’t and when I go back to my doctor, we’ll figure out what’s next in our plan.

It’s Beginning To Look A Lot Like Christmas


Now that Thanksgiving is done, it’s time to decorate for Christmas.  Our youngest really loves decorating for any holiday but Christmas is her favorite.  We used to get live trees (with the tree ball) so that we could plant the tree after Christmas is over. Once we had several in the yard, we decided to […]

[Continue reading...]

Where I’m From #NaBloPoMo

I saw Alexandra use this template on her blog and thought it would be nice to put together my own. —————————————— I am from a VCR with wired remote, from a floor model TV the size of a twin bed and family time watching Family Ties.  I am from the laughter filled and loud one story […]

[Continue reading...]

Happy Thanksgiving #NaBloPoMo

Every year my SIL shares this video and every year it makes me laugh so I figured I would pass it along. I love Thanksgiving and wish everyone a Happy Thanksgiving. Like this:Like Loading…

[Continue reading...]

The Boys Are Back In Town #NaBloPoMo

Our two oldest boys are back from college for Thanksgiving break.  It makes me so happy to see them and hang out with them. We went to my MIL’s house for dinner and will go to my aunt’s for Thanksgiving day. We spend the late evening talking about the world, current events, what’s going on […]

[Continue reading...]

Feelings on Ferguson #NaBloPoMo

Sick Angry Sad Helpless Confused Exasperated A whirlwind of emotions I felt as I watched the press conference concerning the possible indictment of the officer who killed Michael Brown in Ferguson. As it started you could see where it was going.  It seemed as if it were a long explanation in an effort to soften […]

[Continue reading...]

Parent Teacher Conferences #NaBloPoMo

In the last few years the parent/teacher conferences at the elementary school have gotten later in the year.  They have moved them to the same week as Thanksgiving instead of early October when they used to be.  In some ways it is good because the teachers have more time to get to know the kids […]

[Continue reading...]

Random Round-Up 27

This is a random set of tidbits from the week along with a sprinkling of bloggy love. I think I’m ready to grow my hair a little longer again.  I’ve had it short for many years now, since I donated to Locks of Love, having it that long was kind of a pain so I […]

[Continue reading...]

Guns #NaBloPoMo

As I got back from the bus stop the other day and took off my shoes, I had a flash in my mind of the unthinkable, though sadly it has happened to others.  I thought to myself, this month before another heartbreaking anniversary, how I would react if a mentally unstable person took aim at […]

[Continue reading...]
%d bloggers like this: