Well I finally had an appointment with the gastro doc to discuss whether or not I have serious issues with gluten or not. I explained that I was on a gluten-free diet for 3.5 months and then when I reintroduced gluten, I pretty much felt like shit every time I ate. I described my symptoms and indicated that I suspect I at least have some sort of intolerance but I want to find out for sure whether I do or do not have Celiac Disease.
He referred to Celiac Disease as “Sprue” which I had never heard before and was not interested in blood tests or anything like that. He said the “gold standard” for testing for Sprue is to do a biopsy of the small intestine. I knew this was the case but actually didn’t expect to jump right into a biopsy. But, I want to know as soon as possible so I signed up for the next available appointment which is Thursday.
He had another phrase that I quite liked. He said that some folks who don’t have Sprue, still benefit from at “gluten deprived” diet. Basically, mostly gluten-free but you do eat gluten containing foods sometimes. That is basically what we have been doing with A and T. We’ve been letting them have gluten on special occasions.
I’m still eating gluten until my biopsy but man it makes be feel awful. If the test does come back negative, I am definitely going for “gluten deprived”.
- Celiac disease – sprue – All Information (umm.edu)